Friday, May 21, 2010

APFED Twitter Party for Eosinophilic Disorder Awareness – Recap

If you missed the twitter party yesterday with the American Partnership for Eosinophilic Disorders, you can still catch up on the discussion. Just go to twitter and search on #ANEAW or check out the @APFEDorg twitter page and you’ll see what was discussed.

Here are just a few of the takeaways from the twitter party yesterday on eosinophilic disorders:

From @DrPutnam:

In response to the question, “How common is EE?” It probably varies somewhat by geographic area, but approximately 55 patients per 100,000 people is the estimate for the US.

Both children and adults can get EE. Adults can either have it from childhood persisting into adulthood, or they develop symptoms in adulthood.

From Dr. Markowitz:

Anyone can get EoE, any ages, any races. Boys tend to get it more often than girls, by about 3 to 1.

From @DrFuruta:

One study by Dr. Kagalwalla showed that by eliminating the 6 most common food allergens, most patients with EoE were cont. brought into remission. The six foods eliminated included cow-milk protein, soy, wheat, egg, peanut, and seafood.

From @DrSaGupta:

There is data and clinical experience to support that EoE (eosinophilic esophagitis) can occur in multiple members of the same family.

A big thank-you to all the doctors who supported this event!

One last note – there is still time to bid on Demi Lovato’s dress to support APFED. Check it out on ebay!

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