APFED (American Partnership for Eosinophilic Disorders) conference in Indianapolis this year. This is a family conference – with activities for kids and teens as well as fantastic, informative sessions for adults. Here’s a recap of just a few of the interesting facts I learned:
5% of patients with EoE have a co-existing condition of another EGID (eosinophilic gastrointestinal disorder).
Like other atopic diseases, EoE tends to run in families (with males outnumbering females 3 to 1).
We have seen a dramatic increase in EoE, but it’s not clear whether this is a true increase or recognition of the disease. Until the mid-2000’s there were very few citations in medical papers/research.
There are considerably more EoE instances reported in urban areas than rural (and especially on the east coast). Could this be (at least partly) a result of both recognition and the fact that major centers for EoE are in these areas? (Which came first, the chicken or the egg?)
The epidemiology of non-EoE EGIDs is poorly understood. We now know a lot more about EoE than when my son was diagnosed 15 years ago, but there’s a long way to go!
EoE symptoms vary by age: The youngest may experience feeding disorders or vomiting (yeah, all that spitting up is NOT normal), whereas older patients are more likely to experience swallowing difficulties and food impaction.
The biggest culprit? Milk! (That is certainly true for my son.) Followed by egg, soy, wheat, and nuts.
As with food allergies, it seems that it’s relatively common for those with EoE to also have another allergic disease – especially asthma, and be very sensitive to air-borne allergens.
This all rings very true for me, confirming things I suspected. What about you?